It's gotta be cooler in Montana....

My gypsy soul is having a melt down and I'm trying to revive it.  And why have my recent blogs been kinda sad.  Well, damn it!  This disease is sad, no cure, no remission, just progression and isolation.
     My dear Artist Way sisters are tempting me with a trip to Montana to visit an AW sister.  The thought of mountains and cool air are so tempting as it has been in the 100s here with high humidity.  I mentioned the idea of my going to Bozeman for a few days to He-Who-Sleeps-Alot and he had a fit.  He wants to go somewhere and the idea of my going on "another" all girl trip makes him mad.  And sadder yet I have come to the realization that it is more than I can manage to go through airports with him without some help.  I have a hard enough time getting me through with knee replacements and our last experiences together have been frustrating.  On one trip he carried someone else's bag off the plane...thank God they caught up with us.  On another he couldn't figure out what to do at security and then couldn't find his bag on the belt.  I can't imagine trying to change planes now with him.  All of it very confusing for him.
     I'm not sure I can drive long distances anymore.  San Antonio is just far enough but could I make it to NM?  That's a possibility.  I know He-Who gets so bored and what will he do when the campaign is over?  Is there something called the summer doldrums?  I think so.
    I worry that he doesn't get any exercise.  Yesterday in the pool I tried to get him to just walk back and forth with me but he mostly just sits or stands around picking leaves out of the pool.  I'm sure that is comforting behavior for him as that is what he used to do with our pool in Nassau Bay but I just wish I could get him moving along.
     And I wish a fairy godmother would come along and whisk us both back to San Miguel.  Wheeeee!

No boost from Boost

Well, the Boost didn't boost this morning.  Every day for the past three years I have put a chocolate bottle of Boost on the breakfast table for He-Who-Sleeps-Alot.  I add it to the other breakfast stuff as I feel he needs the "boost".  He takes his morning pills with it along with his Axona drink.
          This morning I am sitting in the living room and he comes in with the empty Axona glass in one hand and the full Boost bottle in the other.  "What is this?" he asks holding up the Boost.  I told him what it was and that he should drink it.  He did and I'm thinking, "Oh boy, this is going to be a fun day."
      Right now we are waiting for Dr. Ho (yeah, that's really his name), the podiatrist to arrive.  One of the nice services offered here is having Dr. Ho come to our apartment when needed.  We sign up ahead of time for a slot on a Wednesday once a month but we are never sure what time he will show up.  Looks like he is running late again.  Life on hold with the elderly...I can't leave as He-Who won't remember he is coming and won't know how to pay him.
      A good time to blog, huh!

Caregiver's Lament

Caregiver’s Lament

The bracelet labels me “Caregiver,”

gives me an ID number

labels me as one who looks after someone with memory loss.

But there are some days now

when I don’t want to “care,”

don’t want to answer the same question for the tenth time,

days when I try to find the courage

to say no to another trip to Starbuck’s,

days when I don’t want to explain which is the phone,

which is the TV remote,

days when I tired of coaxing him to eat,

to take his pills, to brush his teeth,

days when I have ask him not to wear his pajama top to church

even though he calls it a shirt,

days when I’m tired of being angry and frustrated

when I am lonely and miss the brilliant, funny man I knew.

There are days when I want to take off that cloak, that bracelet

and travel to an exotic landscape if only in my mind,

when I want someone to ask me if I would like to go for ice cream

or would I like to watch a movie?

when I wish someone else would take out the trash,

days when it would just be nice to be remembered

days when I wish someone would take care of me.

A neighbor moved today

A going away party for my lovely neighbor, Elizabeth Lanham, in the blue print blouse.  She is 90+, sharp as a tack and going back to Gatesville to live with her son.  I will miss her and the irony of living next to my maiden name but there will be an enclave of Lanhams up near Dallas where quite few of my Lanham relatives live already.  He-Who, in the background, had a fair time at the party but left early.  I think the estrogen level in the room must have been overwhelming, plus he has difficulty hearing and understanding in a room where there is a lot of high decimal chatter.  Geez, so do I sometimes!
I'm going through file after file and throwing away and shredding.  Fortunately our office will shred for free.  How does all this paper accumulate!!
Our TV is not working correctly and after an hour with Xfinity/Comcasst they finally decided to send a technician but not til Monday.  Bah humbug!
Better go check the fridge...I asked He-Who to put away the soup container and sometimes stuff ends up in the freezer.  He has the hardest time with any kind of directions in spite of my efforts to make them simple.
He was a happy camper yesterday.  We found him two new Hawaiian shirts at Walmart and he loves them.  I'm for anything that is wash and wear!  :)

Communion

We don't often get to church and I so miss our wonderful congregation at the Bay Area Unitarian/Universalist in Clear Lake but I'm finding there are many other opportunities to practice our faith.  One has come up recently with my neighbor.  I will call her Beverly, at least 10 years younger than me and declining rapidly with dementia.  Her sister, Alice, is here for the second time in the last 9 months to look after her. Beverly has been very reclusive since we met her two years ago, seldom eating with others in the dining room and never attending any activities.   The few times I have seen her she wore a "deer-in-the headlights" look.  Alice lives in North Carolina, a retired nurse with an adult son who is autistic.  She has been here now for several weeks getting her sister through a gauntlet of tests.  Alice wants to move Beverly to NC and has located a pleasant assisted living facility not far from Alice's home but Beverly is resistant, of course.  At this point Alice is pulling her hair out trying to deal with it all and has been shut in her sister's apartment helping her dress, etc.
     I ran into Alice taking a walk for a break and invited her to call or come over when she needed a glass of wine or a hug.  And she called!  I had just made a batch of brownies and invited them both over for wine and brownies.  Beverly doesn't drink alcohol any more which is a good thing but was happy with a cold Fresca.  And Alice talked and talked and He-Who so enjoyed the visit.  I did what I could to support Alice and the move going through all the reasons why we are moving to San Antonio.  Beverly sat listening but said little.  Alice calls her by the nickname of "Bev" and when I hugged her goodby, I asked if I, too, could call her Bev.  She smiled and said, "Of course, you are family now."  Mission accomplished!!!
      On reflection I thought we had just had communion shared with love and compassion.  And this is what it is all about.  And it was so good for He-Who to feel that he was helping and contributing.  And he showed them the new book with the dedication to him.
     Later I ran into Alice again and she thanked us once more and said that was the only social event she has had here.  Damn, this disease can be and is so isolating for the victim and the caregiver.

Reeling and sad...what has happened to America?

      OMG, what a horror!  This terrible mass shooting has left me shaken to the core!  And certainly has a way of putting my life in perspective!  I can't imagine what it must be like to be the mom waiting outside the Orlando hospital for word on her son!  My heart bleeds for her and all the other families sent reeling by this latest senseless murder of dozens.  Why cannot we put an end to these massacres?  Why are assault rifles available to civilians or in this case, someone already on a list of suspicious ties to ISIS?  What happens to a young person to fill them with such hate?  And I can't imagine what other countries must be thinking as they observe our armed population and the arrogant, racist bully who has become one of our presidential nominees.
      My life as a caregiver seems simple in comparison and I can better appreciate the isolation and insulation we find here on this Island of the Blue Hairs.  Now my task is to prepare for the future move to another Island on the northwest side of San Antonio.  We signed a lease last week for a projected move-in the end of September or October.  How did we accumulate more stuff in the 2 short years we have lived here?
      He-Who-Sleeps-Alot had a great time last week in San Antonio at our granddaughter's high school graduation.  My daughter-in-law and a friend had a large party to celebrate and we both enjoyed meeting our granddaughter's friends and their parents and grandparents.  He-Who was quite sociable chatting with guests and I doubt anyone suspected he would not remember any of them the next day.  But he did remember he had a great time and I am so grateful for these moments of joy.  My DIL knocked herself out cooking for all of us and making sure we all got where we needed to be at the right times.  Love that woman!  I'm finding my son to be an amazing host as well and he is having such fun with his new outdoor kitchen complete with a TV...his outdoor man cave that produces delicious grilled shrimp.
      Darn my stupid back...went bizzerk the morning of graduation so I was kinda limping along but managed to make it through all 600+ grads and home again.  It isn't a new problem as I have ruptured discs in my lower back but it certainly was inconvenient and still bothers me.  My regular orthopedic doc has left the practice and I can't get into another until July 13.  I kept thinking I would wait until we moved but realize I better get it attended to ASAP.  I managed to drive home from San Antonio but have been babying it ever since with heat packs.  But again, looking at Orlando, I'm trying not to complain and He-Who is happy to do any lifting.

      He-Who had a wonderful surprise on returning home.  Four copies of the latest book, Space for the 21st Century, edited and published by his good friend, Langdon Morris, from the Aeronautical Technology Working Group that He-Who formed years ago.  It has a beautiful dedication to He-Who as a leader in aerospace...brought tears to my eyes and certainly gave him a boost.  It means so much to both of us to have his tangible legacies.
     So much to be grateful for.....we are blessed indeed.

My sweet, always gallant husband...

Alzheimer's may have taken his short term memory but he is still the gallant man who loves to help.  He is the one who charges ahead to open doors for those with walkers or wheel chairs or move a chair in the dining room to assist.
Once again more dining room humor:  A dear 95 yr old woman joined He-Who, another resident and me at a table for four.  She mouthed "I can't hear anything" and pointed to her ears.  Oh dear, the other three of us are thinking.  It seemed she couldn't talk above a whisper if she can't hear...strange.  The more she indicated that she couldn't hear, the more concerned the rest of us, especially He-Who.  She kept mouthing how quiet it was but she managed to order lunch and ate well.  I wrote on a napkin that perhaps she should contact her daughter and that we would help her do that.  "No, no," she mouthed.  "My daughter is coming.  I am fine."  She finished her lunch and left leaving the three of us debating what to do and with questions like "did she have a TIA (mini-stroke), should we go with her, should we contact the nursing staff?"  He-Who insisted we go down and report it so the nurse would go by and check on her.
That evening I went to play Mexican Train Dominoes with friends and mentioned the incident.  "Oh, she does that all the time.  She forgot her hearing aids again."  Whew!  Good grief!
End of story of life on the funny farm.